Bridging The Gap

Expectations,” nearly Social Media Events in addition to I lead maintain to say, she actually striking the boom on the caput on every degree possible. 

If yous haven’t read  it- DO information technology NOW, I’ll wait. 

I dearest aid these conferences, I dearest seeing my DOC friends inward existent life in addition to I dearest learning in addition to engaging when it comes to Diabetes,

Now these conferences unremarkably occur at a prissy hotel - And I appreciate that. 

Mostly because I’m physically exhausted afterwards getting upward at 4 a.m. to acquire to the aerodrome for my vii a.m flying to attend the conference.  

And yesteryear fourth dimension the sessions in addition to conferences are done - I’m physically in addition to mentally drained, in addition to so having a house amongst a comfortable bed in addition to expert H2O describe per unit of measurement area inward the shower is a plus. 

And unremarkably I acquire habitation from the aerodrome at 8:30 or 9:30 at nighttime from 1 of these conferences  - And lead maintain to endure at run at 8:30 a.m. the adjacent morning.

But some other a argue I appreciate a expert hotel is because I’m freakishly afraid of bedbugs. 

 I frequent BedBugRegistry.com whenever I go regardless of whether it’s concern or pleasure.

Bed Bugs freak me out. 

With that existence said, I practise I sympathise this postal service by Kim.

The conferences unremarkably get-go at vii a.m. in addition to they go all twenty-four hr menses in addition to if we’re lucky nosotros arrive dorsum to the hotel yesteryear five pm. 

And there’s a lot of data existence thrown out at us. 

And non only nearly products - but nearly diabetes in addition to people living the diabetes life. Some of the discussions acquire heated, others are technical in addition to scientific inward nature in addition to difficult to follow allow lonely tweet or write about. 

We talked a lot nearly diabetes applied scientific discipline in addition to the FDA at this Roche in addition to nosotros took a tour of the facility that makes their examination strips in addition to examination their Nano out - H5N1 lot goes into the diabetes hardware nosotros use. 

Sometimes the speakers at the conference brand me cry, Josh Bleill was 1 of those speakers. 

Sara Nics wrote a beautiful postal service nearly hearing Josh speak, yous tin notice that post, StevesMoutain.com and “like ” his video on You Tube, Roche volition donate upward to $15,000 towards Steve’s cause,

In my eyes these conferences are a social media experiment that is going inward the correct direction, endure from growing pains none the less.

Patients voices are existence heard yesteryear Pharma in addition to at that topographic point is a tidings going on. 

Granted, Pharma gets a lot yesteryear agency of marketing,etc.  - And nosotros all know that. 

But because of what’s going on inward our community, Pharma is engaging amongst other patient communities. I know that patient assistance programs lead maintain been created for people amongst diabetes in addition to I also know many demand to endure created  - non only talked about. 

But amongst that existence said, I concur amongst Kerri  I practise intend that nosotros lead maintain striking a indicate where nosotros practise demand to plough our thoughts into actions - thence the whole “growing pains” reference.  

I desire to come across patients amongst diabetes go to Washington in addition to verbalise to the FDA seem upward to seem upward re: the dull every bit molasses screening procedure it takes to acquire novel diabetes products/ meds on the market. 

I desire patient back upward groups inward IRL (in existent life) to endure available to everyone living amongst diabetes.

 These back upward groups costs coin for staff in addition to locations (at to the lowest degree that’s why the heart back upward grouping at the didactics infirmary where my Endo is based out of was cancelled) in addition to I promise Pharma tin assist brand that happen. 

At 1 conference I learned that girls inward Bharat amongst diabetes are seat inward orphanages or left to drib dead because they aren’t considered of import plenty to relieve - That fact haunts me every day. 

I desire those girls saved. I desire those niggling girls adopted. I desire telephone proper name upward 1 of those niggling daughter. 

I’d dearest an adoption programme to endure railroad train for people amongst diabetes to adopt children amongst diabetes from other countries who are considered unadoptable because of their broken pancreases. 

I desire meliorate prices for those of us amongst insurance in addition to for those of us without - And I lead maintain no occupation telling Pharma that seem upward to seem upward - And I have. 

I desire Pharma to assist brand my pre -existing status a none number when it comes to insurance. 

I desire to endure able to assist whatever reader who asks for assist re: diabetes supplies to acquire that help. 

I desire diabetes connections to endure made, big in addition to pocket-sized in addition to both inward existent life in addition to on-line. 

I desire options to process my disease, meliorate insurance co-pays for the medical necessities similar insulin, insulin pumps & examination strips that I require to live.  

And I desire a cure.  

I would dearest that yesteryear the fifth Anniversary of the Roche New Media Summit the sometime in addition to novel patient voices proceed to endure heard inward Diabetes in addition to the Diabetes On-Line Community. 

But amongst that existence said, I desire conversations that we’ve had to go actions. 

I desire us to actively twain those gaps that be instead of only talking nearly it. 

And it is my promise that activity focused conversations at these conferences force through real existent outcomes  for people living amongst diabetes. 

And THAT actions becomes the norm, non the exception.

Bridging The Gap