You Desire To Know What's Exhausting? Living Amongst Diabetes & Diabetes Media Muck - Ups!

So the wonderful Melissa Baland Lee from Sweetly Voiced posted a link to a Chicago tidings study on facebook this weekend, most a vii yr onetime immature lady saved her mom amongst diabetes - And the less as well as thus pleasant telephone substitution she as well as other DOCers had amongst the reporter on twitter. Melissa originally constitute out most the storey from the fabulous Christina Ghosn from Stick With It Sugar, And damn if it didn't create quite a discussion!!!

Did I cite that these ladies, ROCK? 

The mom inwards the storey (Jennifer Sheridan) a type 1, went into insulin stupor piece driving - H5N1 nightmare come upwards to life for all of us living amongst diabetes.  And her immature young lady Alexsandra  reached for the keys inwards the ignition as well as turned of the motorcar earlier it striking a tree. 

And that’s awesome - Alexsandra is a total SHERO inwards all dimensions as well as she absolutely should live celebrated!

SIDEBAR: HERE'S the link to the storey amongst the proper diabetes corrections. 

I LOVE seeing positive as well as accurate stories most diabetes  - as well as people amongst diabetes inwards the tidings -Movies, too.

Though I’ve never seen a painting that’s accurately nailed diabetes yet, but I digress.  

But unfortunately inwards this especial story, the reporter included merely about deadly as well as simulated information re: diabetes that made it to air. 

 Most notably the reporter Diane Pathieu, originally stated (the slice has since been edited) that the adult woman was inwards insulin shock  as well as “was inwards require of insulin.”  That storey was tweeted as well as facebooked as well as set on the station’s website. 

FYI: i know I don't own got to order anyone living amongst type 1 diabetes this, but amongst that beingness said: 
NEVER GIVE SOMEONE INSULIN WHEN THEY ARE EXPERIENCING INSULIN SHOCK, A.K.A., LOW BLOOD SUGAR. IT'S DEADLY.

And it's a error that thus many people brand - Including people I know as well as dear - And we've all had right good pregnant friends on coworkers most depression blood sugars as well as insulin because our lives depend on the right data getting out at that topographic point inwards the final result that nosotros are unable to give that data ourselves. 

The Reporter inwards enquiry utilizes Social Media to promote her stories to the masses as well as connect as well as engage amongst her audience,  and railroad train a next inwards the community she represents.  And piece I don’t know it for a fact, I’m certain she hopes that her stories volition live picked upwards yesteryear other media outlets -  

And I totally teach that. 

We all purpose Social Media for those reasons require to live prepared for the accolades as well as the criticisms, both constructive as well as otherwise. 

Social Media is merely that - It’s social  - It’s engaging inwards a conversation, developing relationships as well as allows our voices to live heard..... as well as our stories to live told. 

And when a television set reporter, whose attain is immediate as well as who’s words are taken equally fact yesteryear her viewing public,  makes a mistake, she or he needs to right them - And ain upwards to them - Especially when those mistakes tin live deadly.

 Instead of engaging inwards a conversation amongst the Diabetes On-line community via  twitter, Diane told those who tried to give her constructive criticism that that they were wrong, as well as that “we should handle to disagree.” She threatened to block anyone who disagreed amongst her as well as she did - Including me. 

At 1 indicate she tweeted that ‘the conversation was exhausting’. 

And piece she didn’t tweet that contention to me - I twitterrupted as well as permit her know that living amongst diabetes was exhausting - As was dealing amongst diabetes media mistakes. And similar I said, she blocked me - And without thus much equally a responding tweet.  

Her occupation most “ the conversation beingness exhausting” merely wouldn’t travel out my caput - Because quite frankly, Girlfriend had no clue equally to what “exhausting”  genuinely is.

Exhausting is living amongst a chronic illness 24X7, 365 days a year, for 35 years. 

Exhausting is testing your blood sugars betwixt vii as well as 12 times a day, every twenty-four sixty minutes stream - no affair what. 

Exhausting is calculating the carbs as well as insulin to encompass said carbs, for every slice of nutrient or potable that yous set inwards your mouth. Same goes for injecting as well as calculating insulin to lower a high blood sugar.

Exhausting is beingness a raise who gets upwards ii or iii times a nighttime to banking corporation check child’s (or children's’) blood sugars every, unmarried nigh. 

Exhausting is beingness husband or important other of a  PWD (person amongst diabetes) who worries constantly most their life partner inwards life who lives diabetes.

Exhausting is Injecting (or wearing an insulin pump) every unmarried day of your life in to guild live. 

Exhausting is beingness afraid of your hereafter but pushing yesteryear the fearfulness as well as living a bang-up life despite a broken pancreas as well as a crappy household unit of measurement history.

Exhausting is having to practise all of the higher upwards because nosotros don’t own got a choice. 

Diabetes is f*c$ing exhausting. 

Everything that diabetes requires us is to practise is exhausting - as well as necessary as well as nosotros practise it. EVERY DAY,. 

But what’s genuinely exhausting as well as incredibly maddening is having to accept the fourth dimension to right the media when the study  deadly inaccuracies on a storey most diabetes. 

Because diabetes is non a 1 size fits all illness as well as mistakes when it comes treating diabetes are deadly. 

Reporting that someone was inwards require of insulin when they has a depression blood saccharide puts countless lives inwards danger. 

Giving insulin to merely about who is experiencing depression blood shock  volition kill them or set them inwards a coma. 

Does the holler Sunny Von Bulow band a bell? 

Many inwards the diabetes on-line community, called; emailed, facebooked as well as sent tweets to the station regarding the story, including me. 

I left the Station’s General Manager a vocalization message on Lord's Day night, as well as he non solely called me dorsum on Monday, he'd pulled the video from the website promised to become over the storey amongst a fine comb as well as right whatever of the misleading statements. And he promised to  talk amongst the reporter most the all the issues.... And he also promised to telephone phone me back. 

And yous know what? He did. 

We spoke most an sixty minutes agone as well as I was impressed.  The GM wanted to brand certain the right facts were inwards the the storey earlier he reposted the video on their website as well as he told me his tidings organization had reached out to the Chicago JDRF & ADA regarding the story. He also felt that it reinforced the fact that diabetes as well as reporting on diabetes is to a greater extent than complex than most people think. He wanted to know how insulin pumps genuinely worked as well as talked most that inwards bang-up  detail  - And nosotros talked most all the run that beingness on an insulin view required. 

I explained to him what a CGM was as well as why it was important. 

I also explained that every soul living amongst type 1 has a fearfulness that merely about 1 volition endeavour as well as give us insulin if we’re incapacitated from a low. And that Earth takes what television set reporters say equally fact - fifty-fifty when what they say is far from the facts.

I mentioned the DiabetesAdvocates as well as the quest for "the media to teach diabetes right."  we talked most diabetes inwards the media. 

And I appreciated his professionalism as well as how swiftly he rectified the problem. 

I pointed out that storey was picked upwards yesteryear other media outlets, as well as that piece the master copy diabetes mistakes were corrected, they were replaced yesteryear novel ones. 

One variation of the storey said that the mom had type 2 as well as that insulin pumps eliminate low blood sugars, as well as for merely about reason, other tidings outlets referred to Jennifer equally having “an insulin view installed,” yous know, similar a transmission. 

SIDEBAR: The NY Daily News does have a version of the story that was much to a greater extent than on indicate - Kudos to Erik Ortiz for doing his diabetes research!

And lastly, I mentioned that Alexsandra Sheridan did a wonderfully as well as brave thing inwards saving her woman raise as well as herself from a motorcar crash caused yesteryear a depression blood sugar. 

This brave fiddling immature lady treated her mother's depression as well as comforted her piece they waited for the ambulance. 

And instead of focusing on that - Those of us inwards the Diabetes On-line Community were forced to focus on the mistakes inwards the slice -made yesteryear the media -  And it didn't own got to live that way. And is shouldn't own got to live that agency - EVER.

The media should accept the fourth dimension todo the enquiry as well as teach diabetes right inwards whatever as well as all stories most diabetes. 

Living amongst diabetes is indeed exhausting.... And trying to right diabetes myths as well as mistakes  in both the media as well as the public’s middle is incredibly exhausting - And both diabetes as well as the diabetes mistakes inwards the media are never ending.